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ODAG speaks with United Nations about human rights

UN logo.jpgPeople with dementia from around the world are looking to the United Nations Human Rights Committee on the Rights of Persons with Disabilities (UN CRPD) to have their rights defined and upheld. Ontario Dementia Advisory Group (ODAG), a member of ONDRI's Patient and Community Advisory Committee, and Dementia Alliance International are leading the charge and part of a coalition that's helping to make this happen.

In mid-March, the UN CRPD held a meeting and ODAG's Vice-Chair, Phyllis Fehr, had the opportunity to attend and speak.

People with dementia and supporters are thrilled with this triumph. The ex-Deputy Chair of the CRPD Committee, Diane Kingston, calls it ‘unprecedented.’


Meet: Senny Chan, Research Coordinator

Senny Chan.jpgWhat’s your role with ONDRI?

I’m a research coordinator at Sunnybrook Health Sciences Centre. I mainly work on the front lines – screening, recruiting, scheduling, and testing participants. I also process, manage and upload data to electronic databases, including Brain-CODE.

Why did you choose your profession?

I started working in health care as a clinical psychometrist before moving on to a qualitative research setting. After graduating, it felt like clinical research combined the best of both worlds.


Investigators awarded part of $30 million in grants from Weston Brain Institute

weston brain institute logo.pngWeston Brain Institute announced the allocation of more than $30 million in funding for Canadian research projects that fight brain diseases of aging.

The grants were given to incredible scientists that are focusing on projects with the potential to make the greatest impact in neurodegenerative diseases of aging, an area that is significantly underfunded in Canada.

Congratulations to the ONDRI investigators that are awardees:


Video: Public talk about "Dementia Beyond Alzheimer's"

2017 02 OBI Public Talk.jpgWatch the video recording of the OBI and ONDRI Public Talk about "Dementia Beyond Alzheimer's" featuring Drs. Elizabeth Finger, Mandar Jog, and J.B. Orange.

The focus of the discussion was that other neurodegenerative disorders like Parkinson's disease and ALS can also lead to dementia and other cognitive impairments. They walked about how they are re-examining how we speak, think, and move so we can understand, and eventually treat, dementia better.


Meet: Kelly Sunderland, Research Biostatistician

Kelly Sunderland.jpgWhy is working with ONDRI important to you?

ONDRI is a really interesting since it combines many different angles of measuring the five diseases, and integration at the data level will hopefully allow for more direct links between the different angles. It also makes my role as a biostatistician more intriguing since I'm able to learn and play with so many different types of data.

On a more personal level, my grandmother suffered a stroke 10 years ago, and as a result I’ve been finding the discussions surrounding stroke very educational. It’s exciting to be learning about this disease that’s so prevalent within my own family, and knowing that little by little what I’m doing will have an impact.