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Coordinators: Tips to comfortably complete ONDRI assessments

neuropsychology assessment.PNGThe ONDRI research coordinators are vital to the success of ONDRI and have the most challenging role in the study – to ensure data integrity while maintaining the dignity and comfort of our participants. As data collection continues, their role becomes even more difficult to fulfill.

There are many simple tips to help comfortably complete ONDRI assessments revolving around anticipation, enthusiasm, time and rate, environment, and monitoring.


Media: Patients demand 'right to try' experimental treatment

right to try logo.JPGRead as Dr. Lorne Zinman comments on the activist group that's using Canada's assisted dying law as the basis for a new proposal, which would grant terminally ill patients the freedom to pursue experimental and untested treatments in a last-ditch effort to stave off their deadly diseases.

He says the law is a good idea, so long as there are some safeguards. "When you get an experimental therapeutics we want to make sure that we're not causing harm," he said. He also stressed the importance of protecting the existing discovery process, in order to maintain the integrity of the process at pharmaceutical companies.


Register: The Many Faces of Dementia

future learn logo.pngRegister for the free online course 'The Many Faces of Dementia' to gain a unique insight into dementia through the stories, symptoms and science behind four less common diagnoses.

Who should register?

Anyone with an an interest in dementia, its effects on people and the brain


Announcing the ONDRI 2.0 aims

ONDRI 2.0 aims.JPGONDRI is deep in the process of writing the proposal for funding renewal to begin the next phase of ONDRI, currently referred to as "ONDRI 2.0."

The focus of ONDRI 2.0 is the complete ONDRI 1.0 and build on the knowledge gained to recruit more participants to complete more accessible assessments.

The proposed focus of ONDRI 2.0 will consist of four aims:


Heart and Stroke: Life. We don't want you to miss it.

heart and stroke.pngThe Heart and Stroke Foundation, one of ONDRI's community advisors,  recently rebranded to focus on: "Life. We don't want you to miss it."

Every 7 minutes a Canadian dies from heart disease and stroke.

So we've reignited our fight. We're working even harder and doing even more. Watch this video to see why this means so much.


ONDRI annual workshop outcomes

workshop 2016 group photos.JPG

Thank you to everyone who attended the ONDRI workshop in London in October. It was a wonderful opportunity to meet colleagues face-to-face and discuss achievements, preliminary data and plans for the next phase of ONDRI 2.0.

Special guests from the OBI Science Innovation Team, OBI Core Innovation Team and Patient Advisory Committee's provided helpful ideas for collaboration and direction and left feeling excited about ONDRI.


Meet: Dr. Sali Farhan, genomics

Sali Farhan.jpgIf money was no object, what would you do all day?

One of my major life goals is to start a scholarship program with a central focus on science, technology, engineering, and math (STEM) for young women from underdeveloped or developing nations.

Immigrating to Canada provided me with many opportunities that many young girls still do not have today. I would love to “pay it forward” and continue to work in research and possibly collaborate with many nations and maybe one day, Iraq. If I were ever successful in developing such a program, I would hope to spend my days teaching genetics and biochemistry to young students and help them grow into curious, passionate, and successful scientists.


OBI President's Update

Tom Mikkelsen - Copy.jpgRead Dr. Tom Mikkelsen's, President & Scientific Director at Ontario Brain Institute (OBI), latest update to learn about program renewal, Integrated Discovery Program (IDP) research updates, media coverage, and how OBI is making an impact on research, the economy, and health.

Read previous updates.


Media: Progress in ALS, which took life of Mauril Belanger, accelerating: researchers

Lorne Zinman.jpgRead as Dr. Lorne Zinman explains how the pace of ALS discovery has been accelerated. 

“All the muscles that you can control are the ones you lose,” explains Dr. Zinman. “You become paralyzed and basically locked in.”

"A number of genes that underlie inherited cases of the disease have been identified. We understand the pathology better, we understand how the disease progresses better, we’re understanding how interventions can help patients survive longer.”


Join us at the Alzheimer's conference November 15

2016 11 navigating the road ahead conference speakers.JPG










ONDRI and the Ontario Brain Institute (OBI) are sponsoring the Alzheimer Society London and Middlesex annual conference on November 15 in London. This conference will educate and inform clients, healthcare professionals and those living with cognitive impairment.

This year, three ONDRI investigators will be part of the panel discussion: Drs. Rob Bartha, Elizabeth Finger and Steven Pasternak.

Register today.


Survey: Help develop Ontario's Dementia Strategy

Ontario logo.jpgOntario is launching consultations across the province to help develop a new dementia strategy, which will improve access to quality care for people living with dementia and boost support for those who care for them.

The province is inviting Ontarians to share their views on the new strategy through an online survey and will hold in-person consultations this fall. Public input is being sought on key issues, including:


ONDRI Annual Workshop

ONDRI clinicians and researchers: Join us for the ONDRI Annual Workshop.

October 17-19, 2016
Ivey Spencer Leadership Centre
551 Windermere Road, London, ON N5X 2T1

Register for workshop and accommodations by October 5: Complete this form.
We'll book your accommodations for you.


Manuscript: The ONDRISeq panel

npj Genomic Medicine logo.JPG Read the first ONDRISeq manuscript by the ONDRI Genomics team that was published in npj Genomic Medicine.

Title: The ONDRISeq panel: custom-designed next-generation sequencing of genes related to neurodegeneration

Authors: Sali MK Farhan, Allison A Dilliott, Mahdi Ghani, Christine Sato, Eric Liang, Ming Zhang, Adam D McIntyre, Henian Cao,
Lemuel Racacho, John F Robinson, ONDRI Investigators, Michael J Strong, Mario Masellis, Peter St George-Hyslop,
Dennis E Bulman, Ekaterina Rogaeva, and Robert A Hegele


What is ONDRISeq?

genomics DNA.JPGONDRISeq is a gene panel that specifically targets neurodegenerative disease genes within the human genome. It was created by the ONDRI genomics team.

What are the goals of using ONDRISeq?

We’re using ONDRISeq to investigate if there are mutations in each ONDRI participant's DNA that may in part explain the neurodegenerative disease the participant is diagnosed with. We’re also investigating whether there are mutations in genes common across all five neurodegenerative diseases.