Care Partner Resources

The global impact of the COVID-19 pandemic has been unprecedented. We, at ONDRI, have been thinking about our community – people living with neurodegenerative diseases, dementia and stroke and those who care for them and work on their behalf.

Please find some resources below in the form of targeted articles, videos, events, organizations and other information that we hope are helpful at this time and beyond. 

Canadian researchers trying to understand what COVDID-19 does to the brain – through online games

A team from Western University, the University of Toronto, and Sunnybrook Health Sciences Centre hope to answer this important question with a massive global study on the impacts of COVID on the brain.

Instead of coming into a lab or a doctor’s office, participants will take part in online games from the comfort of their own homes, to help researchers understand the long-term effects of the virus. Study still recruiting! You can sign up here.

Click here to read a descriptive Toronto Star article.

ONDRI webinar: “Taking care of mind, body and soul in the covid pandemic”

A discussion for people living with or caring for those with cognitive or motor problems from Alzheimer’s disease, Mild Cognitive Impairment, Parkinson’s disease, ALS, Frontotemporal dementia, Stroke or Aging. Thank you to all who joined!  

You can find a list of useful resources that were discussed here.

Missed it? You can watch the recorded meeting here

ONDRI supporting international self-care day

Jill Czuczman, a member of ONDRI’s Patient & Community Advisory Committee, shares her experience, in order to raise awareness about self-care and the important role it plays in leading a healthy lifestyle. Jill is a care partner to her husband who is living with Frontotemporal dementia

Watch the video here. 

“Dancing with parkinson’s (DWP)” offers free classes

While navigating their way through social distancing, DWP continues to be guided by its mission of bringing seniors out of isolation and fostering connection through dance. To this end, DWP has recently started to offer free live dance classes through Zoom seven days a week.  To sign up or for more details, click here

Where to volunteer during (and after) the COVID-19 crisis

Whether it’s going on a grocery run or helping someone learn to read, there are some easy ways to give back during the pandemic. To read more, click here.

“Caring for those living with dementia:” a CTV COVID-19 feature

Dr. Richard Swartz, ONDRI Co-Lead, speaks to CTV News about how to care for those living with dementia during COVID-19. Watch the full news clip here.

Severe acute respiratory syndrome coronavirus 2 (SARS-COV-2) and the central nervous system

Read a scientific article from Dr. Fernanda G. De Felice, co-authored by one of our ONDRI leads here.

COVID-19: tips for supporting people with dementia

For people living with dementia, their thinking, learning, and memory are affected, which impacts everyday living. This can be difficult in the best of times, but it can be especially challenging as we navigate life during the COVID-19 pandemic. Read the latest blog from Sunnybrook Health Sciences Centre to learn how to better support those with dementia.

Impact of COVID-19 on people with parkinson’s

Dr. David Grimes speaks with Parkinson Canada, on Facebook Live, about the impacts of COVID-19 on people living with Parkinson’s Disease. Watch the full video here. 

While the new coronavirus is known to cause respiratory illness, some scientists suggest it can also potentially lead to brain and nerve damage in certain patients. Click here to read the latest article from The Globe and Mail.

ONDRI & Partners COVID-19 Messaging: March 2020

Together with community partners, ONDRI released a statement highlighting some easy things we can do to ensure the health and well-being of our community.  For more details, read our impact story here.

COVID-19 webinar for people with lived experience – hosted by Heart & Stroke

Information on COVID-19 is emerging at a very rapid pace and it is generating many questions and concerns for people with heart conditions, stroke and vascular cognitive impairment (VCI). People with these conditions may be more vulnerable at this time both physically, and while trying to cope with physical distancing and isolation.

Watch the webinar on self-management during COVID-19 for people with stroke, heart conditions and VCI here.