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Caregiving concerns and clinical characteristics across neurodegenerative and cerebrovascular disorders in the Ontario neurodegenerative disease research initiative

May 2022
Journal: International Journal of Geriatric Psychiatry
Lead Authors: Derek Beaton, Angela Roberts

All Authors: Derek Beaton, Paula M. McLaughlin, Joseph B. Orange, Douglas P. Munoz, Jennifer Mandzia, Agessandro Abrahao, Malcolm A. Binns, Sandra E. Black, Michael Borrie, Dar Dowlatshahi, Morris Freedman, Corinne E. Fischer, Elizabeth C. Finger, Andrew Frank, David Grimes, Ayman Hassan, Sanjeev Kumar, Anthony Edward Lang, Brian Levine, Connie Marras, Mario Masellis, Bruce G. Pollock, Tarek K. Rajji, Joel Ramirez, Demetrios J. Sahlas, Gustavo Saposnik, Christopher J. M. Scott, Dallas P. Seitz, Stephen C. Strother, Kelly M. Sunderland, Brian Tan, David F. Tang-Wai, Angela K. Troyer, John Turnbull, Lorne Zinman, Richard H. Swartz, Maria Carmela Tartaglia, David P. Breen, Donna Kwan, Angela C. Roberts, the ONDRI Investigators

 

Trajectories of health system use and survival for community-dwelling persons with dementia a cohort study

Caregiving burdens are a substantial concern in the clinical care of persons with neurodegenerative disorders. In the Ontario Neurodegenerative Disease Research Initiative, we used the Zarit’s Burden Interview (ZBI) to examine: (1) the types of burdens captured by the ZBI in a cross-disorder sample of neurodegenerative conditions (2) whether there are categorical or disorder-specific effects on caregiving burdens, and (3) which demographic, clinical, and cognitive measures are related to burden(s) in neurodegenerative disorders.