This is the third and final blog posts featuring letters from a daughter, written to her father who is living with young onset dementia. The post starts off with reflections nearly four years after the last letter was written, where the daughter has built a sense of resilience and strength.
The Lived Experience
This is the second of three blog posts featuring letters from a daughter, written to her father who is living with young onset dementia. The letters, in their own authentic way, represent the various stages of grief and eventual acceptance of this life-altering diagnosis.
This is the first of three blog posts featuring letters from a daughter, written to her father who is living with young onset dementia. These letters, which were never intended to be read, have served a therapeutic function for the daughter; in sharing them, she hopes they can do the same for others.
ONDRI’s newest PCAC member is Ron LaCombe, who has spent the past several years providing support to people who have experienced a stroke.
Shelley, a care partner to her mother who is living with dementia, and a member of ONDRI’s Patient & Community Advisory Committee, reflects on the act of volunteering, and what it has contributed to her life.
The recent announcement that actor Bruce Willis is living with aphasia has generated interest in this healthcare condition. ONDRI researchers study aphasia and associated speech, language and cognitive implications.
Despite the unbearable loss of life and the devastating impact on millions of people worldwide, conversations these days are increasingly turning to what a post-COVID world might look like. Observations through living with Parkinson’s disease may shed some light.
When we left my story in part 1, I finally got off the couch. I went upstairs and retrieved my running gear from the back of my closet and went back downstairs into the basement (it was Canada in winter after all!) I booted up my dusty treadmill and started walking. I no longer cared what it sounded like. The important thing was that I was moving forward — literally.
Part 1 – Life on the Couch: Diagnosis to Despair I have always liked Michael J. Fox. On my first trip to the United States, after seeing him in “Back to the Future”, I was determined to find those same red striped, white leather Nike sneakers, as well as a pair Original 501 Levi’s that his character, Marty McFly, wore in the movie. I returned to South Africa successful on that shopping spree.
The impact of the COVID-19 pandemic has been felt far and wide. Physical distancing guidelines have affected all aspects of day-to-day life, even healthcare provision. Virtual healthcare, powered by digital technologies and by necessity, is said by some to have progressed by a decade in the year since the pandemic hit.