The holiday season is a time for shared memories and establishing traditions. Yet, for families of people living with dementia, every day is different, and traditions may have to be adjusted. Part 2 of our short series focuses on adjusting traditions.
The Lived Experience
Adjusting expectations from the holidays – part 1
The holiday season is a joyous time of celebration and tradition. Yet, for families of people living with dementia, new challenges can mean they need to dramatically adjust their expectations. Part 1 of our short series focuses on dementia and alcohol consumption.
Letters my Dad will never read – Part 3: 21 years old
This is the third and final blog posts featuring letters from a daughter, written to her father who is living with young onset dementia. The post starts off with reflections nearly four years after the last letter was written, where the daughter has built a sense of resilience and strength.
Letters my dad will never read – Part 2: 20 years old
This is the second of three blog posts featuring letters from a daughter, written to her father who is living with young onset dementia. The letters, in their own authentic way, represent the various stages of grief and eventual acceptance of this life-altering diagnosis.
Letters my dad will never read – part 1: 19 years old
This is the first of three blog posts featuring letters from a daughter, written to her father who is living with young onset dementia. These letters, which were never intended to be read, have served a therapeutic function for the daughter; in sharing them, she hopes they can do the same for others.
Finding his voice in a life post-stroke
ONDRI’s newest PCAC member is Ron LaCombe, who has spent the past several years providing support to people who have experienced a stroke.
The big surprise of volunteering
Shelley, a care partner to her mother who is living with dementia, and a member of ONDRI’s Patient & Community Advisory Committee, reflects on the act of volunteering, and what it has contributed to her life.
Communication challenges with aphasia can exacerbate caregiving stress
The recent announcement that actor Bruce Willis is living with aphasia has generated interest in this healthcare condition. ONDRI researchers study aphasia and associated speech, language and cognitive implications.
Personal Reflection: What Living with Parkinson’s Can Contribute to a Post-COVID19 World
Despite the unbearable loss of life and the devastating impact on millions of people worldwide, conversations these days are increasingly turning to what a post-COVID world might look like. Observations through living with Parkinson’s disease may shed some light.
Getting Back to the Future: My First Decade of Living with Parkinson’s Disease (part two)
When we left my story in part 1, I finally got off the couch. I went upstairs and retrieved my running gear from the back of my closet and went back downstairs into the basement (it was Canada in winter after all!) I booted up my dusty treadmill and started walking. I no longer cared what it sounded like. The important thing was that I was moving forward — literally.
Getting Back to the Future: My First Decade of Living with Parkinson’s Disease (part one)
Part 1 – Life on the Couch: Diagnosis to Despair I have always liked Michael J. Fox. On my first trip to the United States, after seeing him in “Back to the Future”, I was determined to find those same red striped, white leather Nike sneakers, as well as a pair Original 501 Levi’s that his character, Marty McFly, wore in the movie. I returned to South Africa successful on that shopping spree.
Neurology in the Era of Virtual Care – an Interview with Dr. Sara Mitchell
The impact of the COVID-19 pandemic has been felt far and wide. Physical distancing guidelines have affected all aspects of day-to-day life, even healthcare provision. Virtual healthcare, powered by digital technologies and by necessity, is said by some to have progressed by a decade in the year since the pandemic hit.