fbpx

The Lived Experience

Letters my Dad will never read – Part 3: 21 years old

This is the third and final blog posts featuring letters from a daughter, written to her father who is living with young onset dementia. The post starts off with reflections nearly four years after the last letter was written, where the daughter has built a sense of resilience and strength.

read more

Letters my dad will never read – Part 2: 20 years old

This is the second of three blog posts featuring letters from a daughter, written to her father who is living with young onset dementia. The letters, in their own authentic way, represent the various stages of grief and eventual acceptance of this life-altering diagnosis.

read more

Letters my dad will never read – part 1: 19 years old

This is the first of three blog posts featuring letters from a daughter, written to her father who is living with young onset dementia. These letters, which were never intended to be read, have served a therapeutic function for the daughter; in sharing them, she hopes they can do the same for others.

read more

The big surprise of volunteering

Shelley, a care partner to her mother who is living with dementia, and a member of ONDRI’s Patient & Community Advisory Committee, reflects on the act of volunteering, and what it has contributed to her life.

read more

Getting Back to the Future: My First Decade of Living with Parkinson’s Disease (part one)

Part 1 – Life on the Couch: Diagnosis to Despair I have always liked Michael J. Fox. On my first trip to the United States, after seeing him in “Back to the Future”, I was determined to find those same red striped, white leather Nike sneakers, as well as a pair Original 501 Levi’s that his character, Marty McFly, wore in the movie. I returned to South Africa successful on that shopping spree.

read more