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The Lived Experience

Adjusting expectations from the holidays – part 2

The holiday season is a time for shared memories and establishing traditions. Yet, for families of people living with dementia, every day is different, and traditions may have to be adjusted. Part 2 of our short series focuses on adjusting traditions.

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Adjusting expectations from the holidays – part 1

The holiday season is a joyous time of celebration and tradition. Yet, for families of people living with dementia, new challenges can mean they need to dramatically adjust their expectations. Part 1 of our short series focuses on dementia and alcohol consumption.

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Letters my Dad will never read – Part 3: 21 years old

This is the third and final blog posts featuring letters from a daughter, written to her father who is living with young onset dementia. The post starts off with reflections nearly four years after the last letter was written, where the daughter has built a sense of resilience and strength.

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Letters my dad will never read – Part 2: 20 years old

This is the second of three blog posts featuring letters from a daughter, written to her father who is living with young onset dementia. The letters, in their own authentic way, represent the various stages of grief and eventual acceptance of this life-altering diagnosis.

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Letters my dad will never read – part 1: 19 years old

This is the first of three blog posts featuring letters from a daughter, written to her father who is living with young onset dementia. These letters, which were never intended to be read, have served a therapeutic function for the daughter; in sharing them, she hopes they can do the same for others.

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The big surprise of volunteering

Shelley, a care partner to her mother who is living with dementia, and a member of ONDRI’s Patient & Community Advisory Committee, reflects on the act of volunteering, and what it has contributed to her life.

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Getting Back to the Future: My First Decade of Living with Parkinson’s Disease (part one)

Part 1 – Life on the Couch: Diagnosis to Despair I have always liked Michael J. Fox. On my first trip to the United States, after seeing him in “Back to the Future”, I was determined to find those same red striped, white leather Nike sneakers, as well as a pair Original 501 Levi’s that his character, Marty McFly, wore in the movie. I returned to South Africa successful on that shopping spree.

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