AIM 4: Health Services Research and Knowledge Translation
Catalyze health services research, system evaluation, knowledge translation and system interventions to improve the health and well-being of Ontarians with neurodegenerative disease.
This platform will:
- Utilize the ICES health administrative data repository to characterize the health services utilization and outcomes of persons with neurodegenerative diseases.
- Develop methods for case identification using administrative data
- Facilitate pragmatic clinical trials and innovative clinical trial designs
- Inform clinical pratice and heatlh care funding policy
- Strengthen linkages between Brain-CODE and ICES
Amyotrophic Lateral Sclerosis
- What care do individuals receive prior to being diagnosed with ALS? Does it differ between individuals who reside in urban and rural regions?
- Is previous use of a potentially disease modifying drug associated with the risk of Parkinson’s disease?
- Does the incidence and prevalence of Parkinson’s disease differ between urban and rural regions in Ontario?
Vascular Cognitive Impairment
Do men and women who have had a stroke:
- Receive different health care services prior to entering a long-term care home?
- Have different levels of care needs and survival after entering long-term care?
Alzheimer’s and related dementias
- How do persons with dementia utilize the health system as they remain in the community over time?
- What is the risk of having two or more “comorbid” neurodegenerative and mental health conditions?