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ONDRI’s Research Data

What it takes to generate high quality data

Reliable data allow researchers and scientists to draw conclusions with confidence, validate their analyses, promote data sharing and collaborate.

High quality standards and careful planning has enabled ONDRI to generate accurate, reliable data. Data quality is at the centre of honouring the contribution of ONDRI study participants, including care partners.

ONDRI created a guided story flow to show how a piece of data travels through its collection and validation processes.

ONDRI data impact  neurodegeneration and dementia research

ONDRI’s unique Foundational study has generated one of the best characterized, cross-disease, cross-platform, multi-visit datasets worldwide. Baseline data are being released to the worldwide scientific community first, followed by longitudinal study data. Data from other ONDRI studies are scheduled to be released at a later date.

study participants, plus their care partners

Neurodegenerative & Cerebrovascular disease groups

Assessment protocols

Participating labs across Ontario

Gigabytes of data - 1st release of baseline data

That’s equivalent to 20 feature films!

ONDRI’s 8 assessment protocols produce deep, rich data

Each of ONDRI’s 8 assessment protocols was specifically designed to capture useful, descriptive data, using validated assessment tools such as questionnaires and specific technologies.

The chart on the left (which can be enlarged through a click) shows a detailed list of tests and data collected.

The chart below shows which assessments were also utilized in the pilot ReMiNDD study.

Types of Data Collected Foundational Study ReMiNDD Study
Clinical
Eye Tracking
Gait & Balance
Genomics
Molecular/ Neuropathology           √          (optional)          √          (optional)
Neuroimaging (optional)
Neuropsychology
Remote Monitoring
Retinal Thickness

Foundational Study controlled data release

The Ontario Brain Institute in partnership with ONDRI has released the baseline data from ONDRI’s Foundational Study.

Benefit from the extensive work that has gone into collecting, cleaning and curating these data.

icon of line graph in magnifying glass

Related resources:

For Researchers: Details on data release and method papers

How ONDRI stores & manages data

ONDRI data are stored, managed & shared through Ontario Brain Institute’s neuroinformatics database, Brain-CODE. The platform holds data from more than 160 researchers at over 20 institutions across Ontario.

Sharing ONDRI’s extensive datasets allows researchers and collaborators outside of ONDRI to draw conclusions with confidence in their search for better diagnosis and treatment methods for neurodegenerative diseases, stroke and dementia.

Related resources:

For Researchers: NIBS Open Source Tools at Github