FOUND (Follow–Up Of Persons with Neurodegenerative Diseases) is a new initiative being developed under the guidance of Drs. Connie Marras and Tony Lang. The primary objective of this web-based patient database is to allow for ongoing follow-up and contact with ONDRI’s original cohort participants. We’re gathering a steering committee of members who can operationalize the vision of FOUND and who have interest in guiding the project’s development.

Interested in joining in this initiative, or looking for more information? Please contact Youness Demnati at