On March 9, 2021 Dementia Dialogue released the latest installment of its podcast entitled “Changing Roles in Dementia Research: From subjects to participants”.
The episode features Jill Czuczman discussing her role as a care partner to her husband David, who is living with frontotemporal dementia, along with Dr. Rick Swartz, a stroke neurologist and ONDRI’s co-lead. Jill expands on her and David’s reasons for participating in two ONDRI research studies, along with volunteering in the Patient & Community Advisory Committee (PCAC).
Dr. Swartz elaborates on ONDRI’s close partnership with the PCAC, which guides the various phases of research, from planning to dissemination. For a listen, click here.
For more information on ONDRI’s PCAC click here.