The Quality Assurance and Quality Control Protocol for Neuropsychological Data Collection and Curation in the Ontario Neurodegenerative Disease Research Initiative (ONDRI) Study

May 2020 
Journal: SAGE Journals
Lead Author: Paula M. McLaughlin

All Authors: Paula M. McLaughlin, Kelly M. Sunderland, Derek Beaton, Malcolm A. Binns, Donna Kwan, Brian Levine, Joseph B. Orange, Alicia J. Peltsch, Angela C. Roberts, Stephen C. Strother, Angela K. Troyer

Large research initiatives designed to generate big data on clinical cohorts have become more common. As such, there is an increasing need to establish standard quality assurance (QA; preventing errors) and quality control (QC; identifying and correcting errors) procedures for critical outcome measures. This study describes the QA and QC approach developed and implemented for the neuropsychology data collected as part of the Ontario Neurodegenerative Disease Research Initiative study.